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Trisomy 13 - Patau Snydrome - Photos, Support and Resources

  Embracing Life - One Moment at a TimeTM

LivingWithTrisomy13.org


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Trisomy 13 Support, Information, Resources,  & Links

For PRENATAL SUPPORT CLICK HERE

TRISOMY SUPPORT General Support & Information about Trisomy 13

Immediate Support  Please click here.

Other Trisomy Photo Sites - Families sharing their stories & pictures,

Photographers who provide complimentary services

Other Helpful Resources for Special Needs Children

Finding Doctors & Midwives

 

Special Moments Captured in Photography - Complimentary Services

The American Child Charity Photographers Guild - A non-profit, volunteer based organization of child photographers from all over the country  who have come together to form a guild dedicated to children in need and their families. They include nearly 300 photographers and collectively provide families in need with thousands of fine art portraits, capturing and preserving tender moments of their young lives.
 
Footprints Photography - Provides desperately ill infants and children in their areas with terminal illnesses with complimentary portrait sessions. 

Now I Lay Me Down to Sleep - Infant Bereavement Photography - A nationwide 501 (c)(3) non profit organization.  No fees for the Photography services. The soft, gentle heirloom photographs of these beautiful babies are an important part of the healing process. They allow families to honor and cherish their babies, and share the spirits of their lives.

Soulumination - celebrates the lives of children facing life threatening illnesses by providing professional photographs—free of charge—of these children and their families. Puget Sound area, Canada, New Jersey, and Oklahoma. We are a small non-profit organization located in Seattle, Washington.

 

 

 


 

Living with Trisomy 13
Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA  92649

info@LivingWithTrisomy13.org

 

 

All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

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