Ironman
for Kids - The Living with Trisomy 13 Community thanks Michael
Hennessey for helping to raise awareness for Trisomy 13 and other
related disorders. See Video & Details>
The American Child
Charity Photographers Guild - A non-profit, volunteer based organization of
child photographers from all over the country who have come together to
form a guild dedicated to children in need and their families. They include
nearly 300 photographers and collectively provide families in need with
thousands of fine art portraits, capturing and preserving tender moments of
their young lives.
Footprints
Photography - Provides desperately ill infants and children in their
areas with terminal illnesses with complimentary portrait sessions.
Now I Lay Me Down
to Sleep - Infant Bereavement Photography - A nationwide 501 (c)(3) non
profit organization. No fees for the Photography services. The
soft, gentle heirloom photographs of these beautiful babies are an important
part of the healing process. They allow families to honor and cherish their
babies, and share the spirits of their lives.
Soulumination -
celebrates the lives of children facing life threatening illnesses by
providing professional photographs—free of charge—of these children and
their families. Puget Sound
area, Canada, New Jersey, and Oklahoma. We are a small non-profit
organization located in Seattle, Washington.
Click here to
download printable LivingWithTrisomy13.org "awareness cards."
Living with Trisomy 13 Focused on prayerful support and gifts of love
to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA 92649
If We Hold On Together Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.
Used with permission.
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy
13 child. It is not meant to replace any medical advise of a professional
familiar with your specific condition. The personal journeys of any parents on
this site are only their opinions and their own journey with having a Trisomy 13
child. You should consult with your own physician or other medical professional
regarding the opinions or recommendations expressed within these pages as to
your own child's symptoms and medical condition.
Looking for ALL families who’ve had a trisomy child of any number.
Whether you terminated, miscarriage, had a stillbirth, live birth -
living or deceased. Including adoptive and Foster parents. Please fill
out the
TRIS survey
to help update the medical literature and to improve the quality and
availability of medical care. Tracking Rare
Incidence Syndromes (TRIS)
Click here to add your information
Ironman
for Kids - The Living with Trisomy 13 Community thanks Michael
Hennessey for helping to raise awareness for Trisomy 13 and other
related disorders. 
- A non-profit, volunteer based organization of
child photographers from all over the country who have come together to
form a guild dedicated to children in need and their families. They include
nearly 300 photographers and collectively provide families in need with
thousands of fine art portraits, capturing and preserving tender moments of
their young lives.
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