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Trisomy 13 - Patau Snydrome - Photos, Support and Resources

  Embracing Life - One Moment at a TimeTM

LivingWithTrisomy13.org

Celebrating MARCH as Trisomy Awareness Month
(March 13th as Trisomy13 Awareness Day)
The LWT13 community supports Ironmanforkids
TRISOMY AWARENESS Active Giving program
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Trisomy 13 Support, Information, Resources,  & Links

For PRENATAL SUPPORT CLICK HERE

TRISOMY SUPPORT General Support & Information about Trisomy 13

Immediate Support  Please click here.

Other Trisomy Photo Sites - Families sharing their stories & pictures,

Photographers who provide complimentary services

Other Helpful Resources for Special Needs Children

Finding Doctors & Midwives

 

Finding Doctors & Midwivess

Are you looking for a Trisomy Friendly Doctor's ;in your area or are you a Doctor who would like to work with families with RARE trisomy abnormalities? Please contact: Fawna, mom to Philina 22 yrs (PT6p & Moya Moya Syndrome)  info@livingwithtrisomy.org Research Coordinator: Tracking Rare Incidence Syndromes (TRIS) project - We are currently enrolling all varieties of Trisomy 13 & 18, living & deceased, for the pilot phase.
To include your child's data and help update the medical literature please see: http://web.coehs.siu.edu/Grants/TRIS/
And to add a link for your Trisomy child's personal web page please see: http://www.livingwithtrisomy.org/

It can be difficult finding Physician's or Surgeons who are willing to work with our children once they hear the "RARE Trisomy" diagnosis. Some in the medical field feel it is not ethical to treat a child that they consider incompatible with life.

Society for Maternal-Fetal Medicine - Why might a patient wish to be referred to a Maternal-Fetal Medicine specialist? Most women seek consultation from or care by a Maternal-Fetal Medicine (MFM) specialist because they "at risk" and considering becoming pregnant or because they are pregnant and "high risk", "complicated", or otherwise worried about their pregnancy.

American Association of Pro Life Obstetricians and Gynecologists

Prolife Fetal Medicine

Right to Life Committee, Inc.
In the news – what’s new
An extensive list of pro – life web sites.
 

 

 

 


 

Living with Trisomy 13
Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA  92649

info@LivingWithTrisomy13.org

 

 

All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

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