Healthcare Professionals
Literature & Packages for Patients

   

SOFT Support Organization For Trisomy 18, 13, and Related Disorders
A Guide For Professionals A package of information given to SOFT families can be sent to you by calling National SOFT headquarters at 1-800-716-7638 or writing SOFT c/o Barb VanHerreweghe, 2982 So. Union St., Rochester, NY, 14624 (E-mail: barbsoft@rochester.rr.com)

Prenatal Diagnosis Information Package - Compiled by Kylie Sheffield (mum of Daniel, full Trisomy 13) in consultation with families on this web site
   
ESSAYS BY TRISOMY 13 PARENTS Free literature to share with your patients

Misgivings  By Barbara Farlow, mom to Annie
© 2009 The Hastings Center, Reprinted by permission. This article originally appeared in the Hastings Center Report, vol. 39, no. 5 (2009): 19-21

WHEN WHAT SEEMS BROKEN IS PERFECT By Barbara Farlow (Annie's Mom)

PATIENT CENTERED CARE Barbara Farlow, mom to Annie spoke at the University of Toronto in the First Annual Sue MacRae Lecture On Ethics and Patient-Centred Care - June 11th, 2008 CLICK TO VIEW NOWW

The decision to accept disability: One family’s perspective By Barbara Farlow BEngSci MBA

A Letter to: Pediatric Physicians, OB-Gynecologists, Geneticists & Healthcare Providers, from ThereseAnn - A parent of a Trisomy 13 child

How Our Babies have changed our Lives by Maria Demers

Trisomy 13 ~ A Printable Handout
A Mother's letter to newly diagnosed Families

Message to All Obstetricians & Perinatologists
Message to  All Physicians, Specialists, and Doctors Alike  by Mary Mabeus

Letters to Physicians
-Trisomy 13 Survival Tactics
-Patients Plan of Care - Faith in Action
-Considerations in Making a Specified Plan of Care
by Janina E. Arritola

How can anyone say that these children do not contribute to society, therefore what is the point??
by Melissa Roy