Home SEARCH What is Trisomy 13? About This Site Donate
Contact Us

  Embracing Life - One Moment at a TimeTM

LivingWithTrisomy13.org

Ironman for Kids - The Living with Trisomy 13 Community thanks Michael Hennessey for helping to raise awareness for Trisomy 13 and other related disorders. See Video & Details>

Trisomy13 Awareness

The Living With Trisomy 13 Community Supports
Ironman for Kids - Michael as he travels the world to raise awareness for Trisomy Awareness.

 

 
Be sure to look for his latest coverage from San Francisco,
Michael has completed his tenth Ironman, coming soon.

Play in Windows MediaPlay mp3 streamPlay in RealPlayerDownload mp3

play 
 
Thursday, June 26, 008
Can You Race 22 Ironmans in a Year?
Specs: 9 mins, 15 sec | 2.65 MB  AUDIO
  Presented by: Silverman

Some say it's courageous...others say it's crazy. Michael Hennessey is on a mission to race twenty-two Ironmans this year in an effort to raise awareness about a chromosomal disorder in babies called Trisomy. Today on Endurance Planet we hear about the amazing effort. Michael's site is http://www.ironmanforkids.com.
 
  • Play in Windows Media                                     Michael HennesseyMichael Hennessey
     
  • Play in RealPlayer
     
  • Play mp3 stream
     
  • Direct link to mp3 file

    Please visit our sponsor!
    http://www.silvermannv.com


     
  • Thursday, 21 August 2008  Running for others - Video Some people run the Penticton Ironman triathlon for more than the challenge and glory.
    Tuesday, August 26, 2008 Triathlete aims to break Guinness world record  By Allison Cano/Special to The Penticton Herald
    Aug. 20, 2008  Ultimate Ironman Pushes Himself to Help Ill Kids.
    8-8-08 Triathlete for Trisomy: Man Defends Severely Disabled Trisomy  Lifesite - Pittsburgh, PA, USA
    7-14-08 Click for photo at Frankfurt 2008
    7-4-08 batiansila blog Highlights Michael Hennessey & his Ironman for kids foundation

    7-4-08
    Off to Germany/Austria    Posted by ironman under: Blogroll .
    It's time to pack the bag & bike box again. Team-Trisomy is off to Ironman Germany to race this Sunday. Luckily there were only 450,000 spectators at last's years race so I won't be lonely. There should be lots of action with all the world's top pro's duking it out. In 2007, two pro women raced neck and neck for nine hours. Please tune into to follow all the action. 
    The travel plans are quick and fast. Leave Friday, arrive Saturday and register, rest some, and then race Sunday. It's a tough trip but less time away from the family and work. After collecting myself, then it's some time with old friends from my teaching days in Mexico and off to Ironman Austria for some R&R.   More>

    7-3-08 --Please Say a special prayer for Michael and his IRONman for Kids Mission. Today Michael is waiting to hear on a possible sponsor to his IRONMAN mission. Please lift Michael and Paul up in prayer that this will be the next step forward for his mission of hope for our trisomy families globally.
    TV NEWS!!!!!!!
    Michael Hennessey TEXAS IRONMAN attempting to set a worlds record in 2008 for TRIsomy Awareness

    To read the article and view Video click here KXYL.com
    6-26-08 Can You Race several Ironmans in a Year? LISTEN NOW
    Michael Hennessey is on a mission to race several Ironmans this year in an effort to raise awareness about a chromosomal disorder in babies called Trisomy. Today on Endurance Planet we hear about the amazing effort. ... Main site click here EndurancePlanet.com Interviews    
    Ironmanlife: Michael Hennessey's Mission
    Kevin Mackinnon profiles the man behind Ironman for Kids


    Published Friday, June 13, 2008
    5-27-08

    team-TRIsomy ™ Celebrates Michael Hennessey completion of his 5th Ironman event. Michael has a big heart and is helping to promote Trisomy Awareness around the world. Be sure to view his site IRONMAN FOR KIDS  and his Archived Blogroll  
    Looking ahead to June 6, 2008 Big Man - Prague, Czech Republic, If you would like to help Michael on his amazing feat. Contact him at http://ironmanforkids.com/contact-us/  michael@ironmanforkids.com

    4-25-08
    Michael is on his way May 25, 2008 to Ironman Brazil

    team-TRIsomy™  Ironman for kids

    Still looking for larger sponsors, Airline flights etc...Join team-TRIsomy™ http://www.ironmanforkids.com
    and help where you are able.

    Michael has the airline tickets covered and the entrance fee for the race covered. Still looking for an inexpensive place to stay. He hopes to find a kind someone to open their home, or have connections for his stay. If you would like to help Michael as he travels the world for Trisomy Awareness then please contact Michael Hennessey IRONMAN  michael@ironmanforkids.com
    Give him a hello and support via email when you have some time. Follow his BLOG

    3-12-08
    Read the March Ironman for Kids Newsletter featuring Trisomy Awareness
    2-18-08
    Michael’s IRONMANFORKIDS.COM first TV interview

    You can help IRONMAN FOR KIDS raise funds just by using GoodSearch for your Search Engine needs this year.

    Ironman for Kids

    Bringing Hope ~ Celebrating Life

    Michael Hennessey–husband, father, regular guy with a zeal for the Lord, will attempt 18 Ironmans in 2008 across the globe for Trisomy Awareness!

    Please go to Michael’s site and read all about his passion for our very special kids.
    Home page Ironman for Kids http://www.ironmanforkids.com/
    About Michael
    Charities
    Right now what Michael needs most is PRAYERS. Please pray that good sponsors will come their
    way, so they can help children’s organizations.
    His Race Schedule/ Sponsorship

    Here is a message from Michael:

    Dear Supporters,

    They say doing an Ironman is the pinnacle of endurance athletics and in particular that the Ironman is all about overcoming adversity. The most vivid image that comes to mind is Dick & Rick Hoyt. The father that loves his physically challenged so much that he pulls, pushes and drags his son through the lava fields of Hawaii so that his son can feel the exhilaration of finishing an Ironman. Parents and children living with trisomy 13 endure plenty of adversity each day and this special quest is for them.

    Racing an Ironman is a very spiritual experience but just a means to an end. Sadly, Ironman has come to reflect individuals conquering something much bigger than themselves on their own. Only God’s grace is sufficient for us. We are not trying to conquer the world. Christ has already done that. We simply want to give back to those in need. We have been blessed with six healthy and vibrant children and felt called to do something that would witness to the value of life. The beauty and affirmation of human life that flows from the living with trisomy 13 group fit perfectly. The value of life fully represented here is why we want to dedicate this special mission of mercy to them.

    What can we do as a Community to support Michael?
    PRAYERS will help bring everything together. What Michael needs most is a SPONSOR or many SPONSORS to help this all come together. If you know of any
    organization who would like to help sponsor him, please contact them and pass on this wonderful mission of love.

    What are we hoping to do as we support Michael and follow his journey around the world in 2008?
    This will be fun and very exciting following and watching his events. We have families around the world that have been touched by Trisomy 13. We’ll do our best to help support him at each Ironman event.

    It’s taken me a few months to ponder this as I know many will say who is he? Why should we support him? What’s in it for us? Why do we need to help him?
    As I myself have thought about all of this, I see Michaels passion for kids as not much different than our own. He is on a quest, a journey and is going to live from event to event...hoping all the right doors open for him to travel through each one. What he is doing will in turn, bring awareness to our Families Journey’s throughout the world.

    He feels a call from above to help organizations such as ours. With our prayers and support and help if possible in getting some sponsors this will
    become reality. With this new worldwide awareness towards our LWT13 community, I believe 2008 will be the year we can get our Non-Profit
    501c3. This would be a wonderful blessing.

    If you know of any large organization or business that would like to be part of this amazing feat...please contact Michael
    Also feel free to call or email Michael if you just want to get to know him or his family better especially with any questions.
    Contact http://www.ironmanforkids.com/?page_id=19
    email: michael@ironmanforkids.com

    Ironman for Kids
    833 N. Saint Mary’s Street
    San Antonio, TX. 78205-1332
     

     

     

    Click here to download printable LivingWithTrisomy13.org "awareness cards."

    Living with Trisomy 13
    Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
    Inspired By An Angel
    Attn: LivingWithTrisomy13
    15802 Springdale St.. #68
    Huntington Beach, CA  92649

    info@LivingWithTrisomy13.org

     

     

    Text and graphics © LivingWithTrisomy13.org 2005-2007 All information found on this site was submitted to us directly by the families and used on this site with their permission.
    Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
    If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
     
    *Disclaimer
    All material on this site reflects our personal journey with raising a Trisomy 13 child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
     

    Looking for ALL families who’ve had a trisomy child of any number. Whether you terminated, miscarriage, had a stillbirth, live birth - living or deceased. Including adoptive and Foster parents. Please fill out the TRIS survey  to help update the medical literature and to improve the quality and availability of medical care. Tracking Rare Incidence Syndromes (TRIS)  Click here to add your information

    Translation
    Search Specific Languages or Countries

     

    Design & Hosting lovingly provided by::
    Apke Web Services