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Television |
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CNN’s Anderson Cooper - 360° Interview: ‘Why I chose not to
have a late-term abortion’ Editor’s Note: Dr.
George Tiller, whose Kansas women’s clinic frequently took
center stage in the U.S. debate over abortion, was shot and
killed while serving as an usher at his Wichita church
Sunday morning. His murder has ignited debate and curiosity
over late-term abortions and why they’re performed. On
Monday, we spoke to Lynda Waddington, who had a late-term
abortion when she discovered her baby would not survive due
to a genetic defect. That prompted Diane Elder to get in
touch with us to share her story. Read this 360° interview
to learn about her experience. |
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Komo News, Reported by Kaylin Krashesky.News article with
video "Hailey's
Hope" (Carrying to term family story) You
can also read more about Hailey
off her prenatal album page |
TV news feature about Sick Kids Hospital – Toronto, Canada
Human Rights Hearing with
the Farlows - parents to Annie
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Now I Lay Me Down To Sleep (NILMDTS) invites you to "EXTREME MAKEOVER HOME
EDITION" on Sunday, March 1 at 8:00pm.
"Amber
Augustin, a volunteer photographer for Now I Lay Me Down
To Sleep (NILMDTS), a nonprofit organization that offers
heirloom photography to parents who lose babies in early
infancy, and her family of five will be the proud recipients
of a new home."
more details and RSVP |
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HEALING THE HEARTBREAK THE POWER OF BABY PHOTOS Now I Lay Me Down to
Sleep - NBC's Today Show - 2008-03-05 |
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Videos |
Introducing Trisomy Awareness Advocates
Michael & Janelle Hennessey of Ironmanforkids.com
To view YOU TUBE VIDEO
click here |
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SPECIAL
NEEDS PLANNING - An Interactive Online Seminar presented by EPLiveOnline and
Merrill Lynch recorded Feb 25, 2009 |
 Now I Lay
Me Down to Sleep (NILMDTS) - Trisomy
 This video was produced for parents and families who are researching Trisomy. |
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MISS Foundations Featured Video
-
Founder and CEO, Dr. Joanne Cacciatore, talks about this amazing
organization. |
 Tangible Memories
MSNBC video for babies who are likely not to survive birth
Healing the Heartbreak - The Power of Baby Photos |
BE A VOICE FOR LIFE - An outreach of Focus on the Family
Another Voice for Life: Todd and Angie Smith
An ultrasound in January 2008 revealed that little Audrey
Caroline had physical problems that would make her life a
very brief one. Her mom, Angie says, "Audrey, you kicked
inside of me as they told us that we should let you go. That
decision was not for us to make. For the next 3 months, you
went to Disney World, to the zoo, and to listen to daddy
sing. On the day you were born, your sisters held you and
kissed your sweet, clean skin. We sang over you as God
welcomed you into heaven — we only wanted to love you the
way you deserved to be loved."
WATCH this short slideshow created in honor of Audrey
Caroline's life. |
What Sorts of People - Living with trisomy 13: Sterotype
Propagation and the Illision of Choice
January 25, 2009 |
IDEAS FOR CHANGE IN AMERICA
“I will open the doors of government and ask you to be
involved in your won democracy again.” - President Barack
Obama - Fully Fund Medicaid Waivers for the Developmentally
Disabled |
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Born Alive Truth Announcing the World Premiere of 22
weeks.
View the trailer – based on a true story |
Celebrating the LIFE of Aaron Barg
A Tribute to Bubba September 13, 1990 - January 23rd
2009
In the Spirit – Trisomy the FLY
By Steven Barg |
Had to share this cute
YouTube video
of Callum Tarling
 He’s
delightful, and so happy. So often we hear those are only photos shared on this
site, and you can’t see how the kids are doing. Well here is a video showing a
very happy child with Patau Syndrome
More on Callum Tarling visit his Album page. |
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Newspaper/Web
News/Blogs |
Landmark study sheds new light on human chromosomal birth defects
EurekAlert (press release) - Washington,DC,USA
... that include Down, Edwards, Patau, Turner, Klinefelter's and XYY
syndromes. ... and can cause human chromosomal birth defects such as
Down syndrome, ... |
Dallas Morning News - Dallas, TX, USA
September 6, 2009
By LEE HANCOCK / The Dallas Morning News
Carrollton couple celebrates son's birth, and begins waiting for the end
September 4, 2009
Editorial:
Better because of Thomas
a Carrollton couple who learned during a prenatal screening that their
first child, a son they had named Thomas, suffered from Trisomy 13. |
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Jonathan’s Celebration of Life - A story of Faith, Hope and Love
(Video on the Blogspot) - Friend’s and Family came together with an
overwhelming amount of gifts and monetary donations that were brought
for children in need, benefiting local children and ministry centers.
Jonathann’s album page on this site. |
Pre-natally and Post-natally Diagnosed Conditions Act Signed into Law by
the President
Victory in Washington - The Trisomy 18 Foundation applauds the final
passage of the Pre-natally and Post-natally Diagnosed Conditions
Awareness Act (S. 1810). The Act, signed into law by President Bush on
October 8th, ensures that families who receive prenatal diagnoses of
Trisomy 18, Trisomy 13, Down Syndrome or other genetic conditions will
have access to up-to-date information about the nature of the condition
and connection with support services and networks that could offer
assistance.
BROWNBACK, KENNEDY INTRODUCE PRENATALLY DIAGNOSED CONDITIONS AWARENESS
ACT
U.S. Department of Health and Human Services HRSA Health Resources and
Services Administration |
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National Post , Tuesday, June 23, 2009
Parents in sick kids lawsuit offer deal by Joseph Brean |
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Visit Kim's "Bargain Kids Clothing Boutique" online
“I started this online webstore in hopes that I would be able to
continue to stay at home with my daughter Kaitlyn.” |
Taylor Passmore’s Legacy page at Legacy.com Memoria Websites
Taylor James "Tayman" Passmore
May 29, 1993 - March 30, 2009
Bellevue, Washington - Taylor
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California Department of Public Health – California Birth
Defects Monitoring Program - Medical Care Treatment -
Any course of treatment will be decided on an individual
basis. Routine follow up care for a child with Trisomy 13
includes cardiac evaluations, eye evaluations, MRI of the
head, abdominal ultrasound, hearing tests, referral for
infant pre-school/early intervention programs, scoliosis
checks through childhood and getting routine immunizations2.
Family support and genetic counseling are recommended.
The California Department of Public Health highlights the
photo of “Tucker Reite” on their Trisomy 13 information
page. Tucker lived for 2 years with trisomy 13. After having
lost Tucker, Jim and Lori Reite opened their hearts again
when they heard through this web site message boards that a
little boy was in need of adoption. Meet “ “JoeyReite” |
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Patricia Farmer honored on May 8th at the Stephens Center.
Farmer co-authored "Trisomy
13: A guide for Families" She also had a son, Joey
Watson, with Trisomy 13. The “JOEY WATSON Fund” has been set
up through SOFT with the proceeds to help families with
travel expenses to the Annual SOFT Conventions. Please note
the “Joey
Watson Fund” |
The Washington Times Sunday, May 10, 2009 ~Happy Mother’s
Day~
Choosing not to abort babies with disabilities By Julia
Duin |
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April 15, 2009 - thestar.com
Parents want Sick Kids taken to rights tribunal |
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Saturday, May 2nd - Another
Ironman For Kids Event
-
Wild Flower Kids Run - at the lovely
San Antonio Botanical Gardens. |
April 3, 2009 — Spirit of our Time
What Sorts of People?
Chromosomal microarray analysis, newgenics, and Annie Farlow
Barbara Farlow (Annie’s mother) has become an International
spokesperson for Trisomy Awareness, you can read more about
her accomplishments off her LWT13 album page for
Annie as well as the link
to her website. |
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ProWoman ProLife Blog- Canada without abortion. By choice.
Call it like it is
Within the article: “I think this new test sounds like
eugenics to me:” Responses from Barbara Farlow, A Trisomy
Awareness spokesperson and also
Annie's mom,
“Medical texts and journals, always choose
the most horrible picture of the same genetic condition, in
which the child is severely afflicted like this...” |
March 31, 2009 Canadian Medical Association -
Prenatal DNA test raises both hopes and worries “...question
whether scientists should even be in the business of
cleaning up the gene pool and have evoked the dreaded "E"
word: eugenics.”
“I feel that the genetic testing ultimately determined her
fate," says Farlow, (mom to
Annie) who lives in Mississauga, Ontario. "She was
treated as a syndrome. She wasn't treated as a child.” |
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Canada -Mar 21, 2009
THE HAMILTON SPECTATOR
Laid-off mom has politicians teary-eyed JACKSON HAYES |
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TRIS (Tracking Rare Incidence Syndromes) In the News |
ROME, FEB. 1, 2009
SCREENING LIFE
Tests Lead to Elimination of the “Unfit” By Father John
Flynn, LC |
Miles to Go for Life & the SPIN TO JOY event, FEB. 28, 2009
By Joseph Pronechen
Although this is an article dated August 2008, its a great
time to share Michael Hennessey and his amazing love for our
Trisomy kids. His efforts to help raise Trisomy Awareness
have not gone unnoticed. To read more about Michael and all
he is doing for special kids go to his website,
Ironman for Kids and be sure to view his
blog and read about the upcoming
SPIN TO JOY |
Feb. 27 2009
Rare cancer can't keep child from being active
Mickayla Pruett was diagnosed with bilateral retinoblastoma
when she was 18 months old.
By Iuliana Petre Killeen Daily Herald |
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DECEMBER 21, 2008
323 days
- In the face of a grim prognosis: love and compassion, grace and strength BY
ROB WARNER |
December 19, 2008
Mercy Medical pediatric home care program - Payton’s story |
August 20, 2008
How Annie’s
short life inspired her mother’s mission TheStar.com by
Helen Henderson “Some families may feel comfortable knowing they will be giving
birth to a child with disabilities; others may not, she says. Either way, their
wishes should be respected through a process that is transparent and
accountable.” More on Annie |
November 23, 2008 From The Sunday Times
It was all too easy to lose my son
Victoria Lambert terminated her pregnancy because the baby
was disabled, but is now troubled by how readily society
accepts such action.
“What I do know, and often think, is that if my son had been
born alive and perhaps with two years to live, were those
not two years of my life that I could have spared to nurse
him? Would it really have been such a big deal? With
hindsight, I think I could have offered that at the very
least to a child I had wanted so much." |
Flashpoint! A Woman’s Right To Choose
by Gary Graham
... No. I’m going to say it. I’m going to say what millions know in the
front of their brains, and many, many more millions know in the depths
of their hearts…but won’t allow themselves to think it, much less feel
it. And believe me, I know I’ll be hated for saying it... |
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Articles - Blogs -
Reports |
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Julie, mom to Wyatt, has a beautiful
caringbridge
site
where she journals the daily happenings with little sister Jolene (born
11/28/07) diagnosed with bilateral retinoblastoma, a rare eye cancer. Julie
shares how she “Saw a Miracle at St. Jude...” |
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Exclusive: Twenty Years of Eugenic Abortion at Ontario Catholic Hospital
Special Report presents hospital policy document approving the procedure By
John-Henry Westen |
Infant death: Grief and the path to loving remembrance
Infant death causes heart-wrenching grief. A Mayo Clinic
psychologist offers parents insight and hope.
By Shawna Ehlers, Ph.D. |
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Trisomy Awareness - Trisomy 21 is Down Syndrome. I
came across this well put together blog which share the
daily new events as they pertain to the Trisomy community as
a whole.
Many of you are familiar with the poem
Welcome to
Holland Hope you enjoy this blog written in London,
Welcome to Illinois
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Australia: No Residency for Boy With Down Syndrome Australia
denies residency to German whose son has Down syndrome;
health minister urges review By TANALEE SMITH Associated
Press Writer SYDNEY, Australia October 31, 2008 (AP) |
Spanish Speaking (Espanol) Trisomy 13 Support Group
There is a a support group, and if anyone would like to join for emotional
support or to learn about the experiences of parents whose children are living
with trisomy 13.
Tenemos un grupo de apoyo en Español. En
este grupo los miembros dan y reciben apoyo emocional y aprenden sobre las
experiencias de padres con hijos que viven con la trisomía 13. |
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Dominic Lawson: Shame on the doctors prejudiced against Down
Syndrome (Trisomy 21) The medical profession has a
visceral bias in favour of eugenic termination
Tuesday, 25 November 2008 |
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In Medical News |
Exclusive: Twenty Years of
Eugenic Abortion at Ontario Catholic Hospital Special Report
presents hospital policy document approving the procedure
By John-Henry Westen
"My daughter Annie was
born with Trisomy 13 and she lived for 80 days. She smiled
for the first time 3 days before she died. We would not have
had that time if we had chosen early induction. I have come
to know many families who had a baby who lived only a short
period of time and every minute was unforgettable to them.
Nobody has regrets. Families need a lot of support to carry
to term and love their children until their natural death.
The offer of early induction denies families this precious
time and that is a tragedy."
In an "early induction" the mother is induced into labor at
a point so early in the pregnancy that even a healthy child
would be unable to live outside the womb without specialized
intensive care; under such circumstances, a severely
disabled child will likely not live more than minutes. |
National Institutes of Health
Office of Rare Diseases Research (ORDR)
Genetic and Rare Diseases Information Center (GARD)
Treatment of children with trisomy 13 is planned on a case-by-case
basis. The type of treatment given depends on the patient's individual
condition. |
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New Prenatal Blood Tests To Diagnose Down Syndrome
Could
Replace Existing Invasive Procedures |
Down’s
signs ’seen in stem cells’
They discovered that the presence of the extra chromosome 21, known as trisomy
21, disturbs a key regulating gene called REST, which then disturbs the cascade
of other genes that control normal development at the embryonic stem cell |
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TRISOMY 13 – Patau Syndrome
IN THE NEWS |
 FREE ~New Family
Package from SOFT
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Healthcare professionals available to
message board members! "Ask the
Pediatrician"
"Ask the Geneticist"
"Ask the OB-GYN"
"Ask the Dentist"
“Ask the RN” ~ Labor & Delivery and NICU experienced.
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Google
New Search – Trisomy 13
Google
News Search – Patau Syndrome
DOGPILE – Trisomy 13 News Now Searching: Yahoo! Search, Topix, FOXNews, ABCNEWS,
And More
DOGPILE – Patau Syndrome News Now Searching: Yahoo! Search, Topix, FOXNews,
ABCNEWS, And More |
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