 |
|
|
 |
| |
To all
Physicians, Specialists, and Doctors alike
 Now
this patient has decided to carry her baby to term. Her baby is born and
she comes to you to “repair” or “fix” what’s wrong with her child. You are
now medically inclined to say “it’s trisomy 13” or “too many
abnormalities”. Don’t think to yourself “what’s the point, there’s no
hope”. Rather, think of the other “normal” children that face these
different medical problems every day that you can “fix”.
Please don’t think of this child any less than any other child that may
have a heart condition, cleft palate, or any other problem. Please remember
that this family has come to you at one of the most vulnerable times of
their life. Realizing that you as a doctor have been given a wonderful gift
of “fixing” people, aren’t all patients deserving of that gift?
Instead of the mindset that these children are not worth saving due to
their chromosomal problem, stop and rethink things a bit. Please don’t
think of these children as a burden to the medical community, but rather as
a true lesson in humanity and compassion. Please remember that no one will
ever know what could have been if you never even gave the effort.
All this family asks is that you at least try. Please do not give up on
this child! Please do all you can and know that the family will be
eternally grateful, even if the outcome is not what they had hoped for.
Remember that these “abnormalities” show no mercy to anyone. It doesn’t
matter what age, race or social status you are. You may also find yourself
one day with someone you love with a chromosomal problem.
Please remember that these issues could affect any one at any time. Please
remember this before you say “I will not operate on this child”. If it was
your own child, what would you do then? Please take a moment to remember
what drove you into this profession. Wasn’t it the passion, love and need
to help and heal people regardless of the situation? Please try to never
forget that no matter how long you’ve been practicing medicine.
Please know that your kindness, compassion and medical expertise when
dealing with this family is greatly appreciated.
When you choose to help this family, you are giving back the gift that was
so generously given to you……….Life!!!
Thank you and God Bless!
Samuel’s mom, Mary Mabeus
Click here for
Samuel's page |
|
|
|
|
|
"I believe that I have never seen
the glory of God and the beauty of humanity more than through the lives of
these babies and children and their parents."
~ E.H.T, MD
San Antonio, TX |
|
|
Living with Trisomy 13
Focused on prayerful support and gifts of love
to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA 92649
info@LivingWithTrisomy13.org
|
All text and graphics ©
LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to
us directly by the families
and used on this site with their permission. |
|
Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela
Sullivan 2004, used with permission. |
If We Hold On Together Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.
Used with permission.
|
|
|
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy
13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional
familiar with your specific condition. The personal journeys of any parents on
this site are only their opinions and their own journey with having a Trisomy 13
child. You should consult with your own physician or other medical professional
regarding the opinions or recommendations expressed within these pages as to
your own child's symptoms and medical condition. |
|
|
|
|
 Translation
Search Specific Languages or Countries
Design & Hosting lovingly provided by::
Apke Web
Services
|
-
Compiled by Kylie Sheffield (mum of