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Trisomy 13 - Patau Snydrome - Photos, Support and Resources

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In Loving Memory of This Treasured
Trisomy 13 Child

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Jack Charnley
January 22, 2003  -  May 21, 2005

 

Family Update February 2006
Jack's New Baby Brother!

These are some pictures of Scott, his full name is Scott Jason Charnley, he weighed 7lb 10 1/2oz and was born on the Sunday 5th Feb at 4:09am.



Allanton, Glasgow, Scotland, UK


Jack received his wings on Saturday 21st May.
 

1-10-05 Jack has Full Trisomy 13, his birth weight was 5lb 6oz, he now weighs 25lbs. He loves lots of kisses and cuddles, he has just started to hold up his head, he can roll from side to side, on to his belly and lift his head.  He also laughs a lot, makes lots of noise like he's having a conversation with you. He gets fed through a G-Tube which is a lot easier than the NG-Tube. He will be starting nursery sometime in Feb, I can't wait I never thought I would ever see the day my son would be going to nursery it's great. Parents: Donna & Jason Charnley. We live in a place called Allanton, near Glasgow, in Scotland, UK

To Jack, our little Angel
 
 A little Angel, now in heaven
to look down on us with love
your pain now gone, you're spirit free
to watch over from above
 
your life though short, touched many
your will to live, so strong
but god alone decided that
the road, it was too long
 
A special baby you are Jack
in many more ways that one
your mum and dad are special too
which is why you are, their son
 
These past two years we've had to face
the hardest things in life
and though their love for you, their son
they became man and wife
 
Today united they will stand
hearts broken, though filled with pride
as on their special Wedding Day
with you there by their side
 
Their memories of you are eternal
the great, the good and the bad
you gave alot of happiness to,
your special mum and dad
 
And so wee Jack, we say farewell
for today is when we part
God has you in his keeping,
we have you in our hearts

 

 

 

 

 

 

 

 

Click here to E-Mail  submitted: 1-10-05

 

Living with Trisomy 13
Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA  92649

info@LivingWithTrisomy13.org

 

 

All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

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