Home SEARCH About This Site Site Visitor Comments Donate Website NEWS & UPDATES Contact Us
Trisomy 13 - Patau Snydrome - Photos, Support and Resources

  Embracing Life - One Moment at a TimeTM

LivingWithTrisomy13.org


Sponsor

In Loving Memory of This Treasured
Trisomy 13 Child

< Memories Page

William “Cole” Stafford

Click here to send an update or photos

April 4, 2009, 1:10am - April 4, 2009 1:40am

  Goldsboro, North Carolina (NC) - Full Trisomy 13  
 

Cole was diagnosed with trisomy 13 at 18 weeks gestation through ultrasound and later through the results of an amniocentesis.

My husband and I were terrified by what the doctors were telling us “multiple abnormalities,” “not compatible with life.” I left the doctor afraid that I might go into labor at any minute and wondering how I would be able to face each day not knowing if my baby was going to live.

When I got home that day, I franticly searched the internet for more information about trisomy 13. That is when I found this website. It was so comforting to read the stories of other families who had been told these same things and to see all the children who were living with trisomy 13.

As the weeks passed on we continued with our daily lives and decided that we would enjoy this pregnancy and not put ourselves through further testing and ultrasounds, we were told there was nothing the doctors could do for Cole his condition was too severe. So we prayed and trusted that God had a perfect plan for our little boy.

On April 3rd at 9 p.m. my water broke and we rushed to the hospital to meet our baby boy. Only 4 hours later, April 4th at 1:10 a.m., we were holding him and loving him. We were joined by our daughter, Ansley-2 years-old, and Cole’s grandparents, aunts and uncles.

We were all so excited to finally see him but our hearts were heavy because his time with us was so short. When I miss him and wish he were still here I just picture him running and playing in heaven.

Trampas and Carla Stafford, carlawstafford@yahoo.com
Sister: Ansley Stafford

 

Submitted 5-27-09

 

Have a child living with Trisomy 13?  We would love to add your child to our Album.
Click here to send us their information. (Please note in the subject area if this is a Trisomy 13 photo as I do not open attachments unless I am aware of the sender.)
 
 


 
 

Living with Trisomy 13
Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA  92649

info@LivingWithTrisomy13.org

 

 

All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

Translation
Search Specific Languages or Countries

 

Design & Hosting lovingly provided by::
Apke Web Services

s