Photo Album
Living with Trisomy 13 - Patau's Syndrome

Zafira Kamilah Nur

Born: Feb 1st, 2008

  Jakarta, Indonesia    
 
10-27-08

Hi, I just want to share the latest Zafira pictures, she is now 6.3 kilo, 65cm, she still can not sit or roll over, but she love to smile to people, her brothers love her too, they say she is the most beautiful baby in whole world.. Here are also the picture when she was hospitalize because of measles.

7-16-08

Zafira now 5 mos almost 6, she is 5.32 Kg, her head circumference now 34 cm, we havent fix her cleft lip, because she has seizures, doctor give her diazepam 3 times a day.

 

5-2-08

Fira spent her first 2 months in NICU because she get BP (pneumonia) she was on the ventilator for about 1 month. She is home now, gaining weight, smiling and now trying to lift her head.

She’s been diagnosed with microcephaly, holoprosencephaly, and spina bifida. She attend PT twice a week.

Warm Regards,
Dian

Dian Arifin
dindut_id@yahoo.com
 

 

Submitted 5-2-08