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Trisomy 13 - Patau Snydrome - Photos, Support and Resources

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Living with Trisomy 13 - Patau's Syndrome

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Katarina Garamvölgyis

Click here to send an update or photos

Born: November 22, 1984

  Stockholm, Sweden - Trisomy 13 Mosaic

I speak Swedish, understand Hungarian and I try to learn French. I get help with the computer, that’s why I cant answer the mail I get so soon.
   
 


Update 9-1308
Hello!
Here are an short update from Sweden.
Today I have been in Västerås visiting Tindras parents.
We have been on one excursion.
Here are a few pictures from our day together.

Katarina
katarinagaram@gmail.com

- - -

Hello!

My name is Katarina. I am 23 years old and my birthday is 22.11. I live in housing for 7 persons and we have persons who help us with all kind of things. There are one supportive personnel per person.

I am a happy and pleasant wild girl. I have worked in a "daily working place" called Ekoxen and I have worked in a cafe at the police. In the autumn I am going to work with other things, I don't know yet what.

The staff in my housing is runs with med every day 3 hours. I am very active person and I like to do lots of things. I like to do a lot of things with my hands; I love to walk in the forest. I would like to experience a ride with a hot-air balloon, I love to experience even a adventure track. I love to ride horses.

Trisomy 13, because of that I have dyslexia. My heart is on the wrong side of me, its not normal. I have also an intestine disease called Hirschprung. I don't hear or see so good, I need glasses. I am going to get a hearing aid to both ears.

Write to me if you want:


Katarina Garamvölgyis
katarinagaram@gmail.com 

 

 

Submitted 7-1-08

 

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Living with Trisomy 13
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All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

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