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Living with Trisomy 13 - Patau's Syndrome

Hazel Dunn

Born: January 19, 2005 

 

Fife, Scotland

Update 8-20-07

Meet my family: My dad Allan, he is the one responsible for giving me my beautiful flaming red hair and specializes in cuddles for hours a day. Matthew my brother likes to cuddle me and watch TV. My sister Rachael likes to play and talks a lot. My mum Allison is always kissing me! Not forgetting Bailey who is always happy to see me!

Hazel is now 2 years and 7 months weighs 12.8kg and 92cms tall. She has continued to grow and be healthy and happy. Her expressions and emotions are sometimes quite amusing. Her health is good she takes antibiotics daily to prevent urine infections. Hazels seizure pattern has increased due to her growing and is currently under review of increasing her daily dose. No emergency medication required yet but we always have it on hand.

Hazel has been introduced to Movement, Gesture & Sign to help with her communication and is getting ready to try a "walker" she loves being in her standing frame and enjoys the upright position. Hazel attends special needs nursery 3 mornings a week and particularly loves messy play and singing group. She loves the interaction with other children.

We have tremendous support from the Children’s hospice at Rachel House where Hazel goes for respite and has a wonderful time, we also enjoy time there as a family and the food is fab! We have nursing staff two nights per week to allow us to recharge our batteries.

We are at present preparing for Hazel to go to nursery at school. A big step forward!

ALLISON BRADLEY allib2@btinternet.com

 

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8-24-06

My beautiful baby Hazel was born 19.1.05 and arrived weighing 5lb 5oz.   Hazel is my third child Rachael (14) and Matthew (13)
  
Hazel is a full trisomy 13 and has been tested twice!  Hazel lights up everyone’s life she comes in contact with!  At 19 months she weighs 24lbs and measures 82cm.  She has been breast fed and went on to bottle at 4 months, she doesn’t like solid food and blows raspberries when given.   Hazel develops at her own pace and already she has met her goals that were suggested as being impossible.
  
Anyone who wishes to contact me please do.

ALLISON BRADLEY allib2@btinternet.com

 

 submitted: 8-24-06