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here for Oct 2005 article about Colton & his family.
UPDATE! 11-2-05
Colton had his G-tube and neesen surgery yesterday morning (11/2) and is
doing great. Dr.'s are pleased, and he looks good! So - so far so good!
That darn NJ tube is finally out of his nose and no tape on his handsome
little face! I know life will be much better
for him now. Due to come home early next week! We can't wait!
I must say, we are so pleased with our NEW hospital and the NEW Doctors.
Colton has been in and out of another hospital since he was born, under the
care of the Doctors there. We got the feeling that we just weren't important
to them after awhile, so took things into our own hands and changed things
ourselves. What a difference to have
Doctors that don't look down on a handicapped child - to have Doctors be
progressive and ready to get things done! Please encourage others NOT to
put up with lasidasical Doctors, they are humans just like us and CAN BE
replaced! Our hospitals are in Orlando Florida, and we simply went from one
side of town to the other, what a difference.
The new hospital is Arnold Palmer Childrens Hospital. They cater to little
ones and don't bat an eye about disabilites.Our new Doctors, in orlando, who
are associate with AP are:
Dr. Livingston - Pulmonologist 407-835-9567
Dr. Nykanen - Cardiologist 407-649-6907
Dr. Plumley - Pediatric Surgeon 407-650-7280
NeMours medical center is next door to AP Hospital and some of these Doctors
are associated there too. Very good place. All 3 didn't bat an eye about
T13 - they all treated him as any other child and said if it needs fixed,
we'll fix it! We are not planning on heart surgery anytime soon, Dr. Nykanen
will keep an eye on it and when it needs done - we'll do it. Could be 6
months, could be 6 years. So, we'll take things one day at a time. These
Doctors were all very pleasant, took time to talk and took action.
Thank you for your prayers!
lballard222@msn.com
and Baby Colton !!!!!
Update 5-12-05
My name is Ashley Harrelson, I am 28, his father is Chris Denton, 34. Our
first child. Colton was born Easter morning, March 27, 2005 (1st one at the
hospital!) in Deland, FL., by C-section. He was 8.2 lbs. It is supposed to
be the happiest day of your life, & it was, but while I was in the recovery
room, the doctor (who we will NEVER see again) came in and basically said,
Well your baby has so many problems, too many to list. He's not going to
make it and is going to die. Thanks have a nice day. He had no compassion
what so ever! It was horrible! A team from Orlando came up with in a matter
of hours and transported him down there. I couldn't go because I had the
C-section, but they did let me go early the next afternoon to get to him.
Anyhow once we got down there, they ran all the tests, told us he has t-13
Patau syndrome. He has the translocation between the 13 & 14 chromosome. The
doctors were pushing us to take him off the machines and take him home to
have "quality time" with him since he would not make it. But luckily we
refused. His heart has a double outlet right ventricle and there is a hole
in the wall that separates the blue and red blood. All of this can be fixed,
of course the doctors first advised against it. Well his heart surgery is
scheduled for June 22 in Tampa! When we finally decided to take him off the
ventilator (talk about scary!!) We brought him home the next day. I think we
were there for like 12 days.
Today he had a check up and weighs 10.5 lbs! The boy does not miss a meal!
He is still on a feeding tube but we are going to work on getting him on a
bottle. They said he would never suck, and you should see him with a
pacifier! All of his insides work, he passed his hearing test in the
hospital. Colton is not on any machines nor is he on any medications. He is
doing Great!! Thanks to all the prayers!!!! Keep them coming! We have had
some great support and info from another t-13 family we found On-line, who
just so happens to live right down the road from us!! Talk about a blessing!



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