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Nalani
Angel January 31, 2005
- June 13, 2005 |
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HI
My baby girl, Nalani, has earned her wings. She passed away on Monday, June
13th at 10:50pm. She had just turned 5 months that very day. Oh goodness how
difficult my journey has been, but nonetheless i am grateful for her. She
made me such a strong person and i couldn't have asked for a more perfect
baby. Now my baby girl is in heaven, free from suffering and free from pain.
Words cannot begin to express the way i feel. So many mixed emotions. Happy
that she's OK now, sad that i'll miss her with all my heart. I love her so
and always will. The pain in my heart sometimes becomes unbearable...I feel
empty.
My prayers were answered her passing was comfortable and pain free. Her
heart was tired and she fell asleep. She looked so lovely. Her mission was
complete. Her life would not be in vain. I am a nurse, who have chosen to
work in labor and delivery so that i may serve as a support for mothers who
receive similar news prenatally and postnatally, and through my teaching, my
Nalani will live forever.
Once again I would like to thank everyone on this site and all over who have
read my story. This has truly been an inspiration and all of you have helped
to comfort me. I am eternally grateful.
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My name is Yasmin, my baby girl Nalani Angel was
diagnosed with Full trisomy 13 in utero. She wasn't expected to live past
30 weeks gestation. Nalani was born FULL TERM on January 31 2005. She
weighed 6 pounds 6.8ounces. Besides extra digits, a little eye and a
partial cleft she shows no signs of any internal organ problems. Her heart
is the strongest thing she has. I will send a recent pic as soon as I can.
This pic is at about 1 hour after birth. |
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Update May 2005
My baby girl has been hospitalized for a little over a month now and
is still fighting strong. The healthy heart that was thought she had is not
so healthy after all. Turns out she has a very large VSD, ASD, PDA and
Pulmonary Hypertension. Her heart takes up half her chest from how enlarged
it is, but it still beats strong. She's a little angel with a big heart.
She was home with me for 2 1/2 months very stable no need
for supplemental oxygen and was doing so well. Unfortunately, from one day
to the next she began to have many apneic episodes coupled with seizures (up
to 8 a day). Through all that she has been, pulling through. The doctors
themselves are astonished at how strong she is. From the beginning I had
chosen not to do any surgeries and that I would have her live as comfortably
as she possibly could. I left her life up to her and she would go when she
was ready and tired. I believe that she came to this world for a reason.
All these beautiful children were sent to us, not to learn, but to teach. I
find my life so fulfilled and I am eternally grateful to her for changing my
life and making me stronger than ever. No matter how little time I have
with her or how heartbroken I will be when she passes, I will never regret
the choice I made to keep her, despite the doctors urging me not to. I also
believe that she is so strong because of the power of prayer and faith, so I
ask all to please pray for my little girl, not for better health, but for
strength and comfort as she completes her mission in life. I also ask to
please pray for my strength to endure what I have been chosen to endure. As
I too will pray for yours. Thank you soo much, this site has been an
inspiration and it is because of all of you that I have felt so much
comfort.
These pics are of my babe at 1 1/2 month and 21/2 months.
Always, Yasmin
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