Home SEARCH What is Trisomy 13? About This Site Donate
Contact Us

  Embracing Life - One Moment at a TimeTM

LivingWithTrisomy13.org

Ironman for Kids - The Living with Trisomy 13 Community thanks Michael Hennessey for helping to raise awareness for Trisomy 13 and other related disorders. See Video & Details>

In Loving Memory of This Treasured
Trisomy 13 Child

< Memories Page

Paul Wyatt Sexton
September 5, 2006 to September 5, 2006
 

  Starkville, Mississippi (MS) - Full Trisomy 13

6-13-08
Julie, mom to Wyatt has a beautiful caringbridge site where she journals the daily happenings with little sister Jolene (born 11/28/07) diagnosed with bilateral retinoblastoma, a rare eye cancer. Julie shares how she “Saw a Miracle at St. Jude...”  Please continue to keep Jolene & the Sexton family in your prayers Praying for a complete healing of cancer. Jolene's Caringbridge site

 
 

FAMILY UPDATE - NEW SIBLING

4-23-08
Jolene's Caringbridge site
We have been blown away by the people that are sending prayers and gestures our way, so we created a site where you can find updates on Jolene.

Thank you all for the many thoughts and prayers. They are so appreciated. I have the HOPE beacon high for tomorrow's surgery. Plus I met a few wonderful children who are also battling the same thing. Wonderful stories of HOPE.

4-17-08
PLEASE PRAY...We need a MIRACLE!!!!

Miss Jolene, Angel  Wyatt's beautiful baby sister has just been diagnosed with Retinoblastoma which is a children’s eye cancer. Our family’s and friend’s hearts are just broken.

Please help us pray for a miracle and healing for Sweet Jolene’s eyes. As many of you know, the Sexton family lost Wyatt to Trisomy 13 in 2006. Surely God could bring them a healing, strength, and peace as they move forward with this diagnosis for their precious Jolene.

Please join in prayer, and please pass this prayer request to all you know, via email, prayer groups and church congregations. We are praying for a miracle for this beautiful family. We put our trust in God our Holy Father and Jesus his son for a healing of this cancer.

Jolene Sexton, little sister to Wyatt. Already family has been told possibly an eye may need to be removed, please pray for healing!

A Mother's letter to newly diagnosed Families

"We were singing "Jesus Loves Me" to him and he opened his beautiful blue eyes and smiled - it is a gift I will always treasure! ....And what an impact he has had on us; teaching us about the value of life and quality of time, and so much more."



A routine AFP test started the nightmare that turned our world on its end.  The test indicated 1:10 odds of Trisomy 18 and sent us to a maternal-fetal specialist.  We hoped it was one of the false positives you routinely hear about.

At that appointment on April 18, 2006, however, our hopes faded.  But not the love we had for our unborn child.  We were told our son had alobar holoprosencephaly, tetralogy of fallot, a small stomach bubble and a possible cleft lip/palate.  They did an amnio and confirmed Trisomy 13 two weeks later.  Abortion was offered as a "solution".

Our prayers, along with this site with the stories and friends we made here, sustained us for the next five months.  I often felt that we were in a time warp as time seemed to crawl, with too many sleepless nights and emotion-laden days to count.  We braced to prepare our two older children, who were 10 and 6, and the rest of our family and friends for the dreaded news.  The prayers we received in return were truly humbling and continue to sustain us.

Paul Wyatt was born via c-section at 37.5 weeks.  He weighed 6 lbs., 10 oz.  His APGAR scores were 2 and 8.  He lived for three hours and one minute.  We prayed that he would not suffer and that we would have time to know and love him.

We were singing "Jesus Loves Me" to him and he opened his beautiful blue eyes and smiled - it is a gift I will always treasure!  He then slipped right into the waiting arms of heaven.  What an angel! And what an impact he has had on us; teaching us about the value of life and quality of time, and so much more.

Kyle and Julie Sexton
sexton88@bellsouth.net

 

Where Angels Hang Around Click Here To Listen:
By James Otto


A hundred miles out of Little Rock, windshield full of rain
I-40 eastbound drivin' while I pray,
She's asleep in the backseat, Holdin' her teddy bear
She's got her daddy's eyes and her momma's hair
But one word knocked our lives off track,
Just one word keeps us comin's back.

'chorus'
Across the Mississippi
A mile or two from Beale Street
Not too far from Graceland
Where the King of Rock and Roll sleeps
To a place for children
Where God sends his mercy rainin' down
In the heart of Memphis
Where angels hang around

All the deals I've made with God, The conversations that we've had,
Tryin' to accept the things I could not understand
I wanna walk her down the aisle, thile those church bells ring
See her get the chance, To live all her dreams
But one word knocked us off track,
Just one word keeps us comin' back.

"chorus"

So sleep tight baby while these four wheels roll
Cause just beyond the clouds there's a ray of hope
There's a place for children
Where God sends his mercy rainin' down
In the heart of Memphis
Where angels hang around.
 

 

 

 

 

 

 

 

 

 submitted: 9-15-06

 

Click here to download printable LivingWithTrisomy13.org "awareness cards."

Living with Trisomy 13
Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA  92649

info@LivingWithTrisomy13.org

 

 

Text and graphics © LivingWithTrisomy13.org 2005-2007 All information found on this site was submitted to us directly by the families and used on this site with their permission.
Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 

Looking for ALL families who’ve had a trisomy child of any number. Whether you terminated, miscarriage, had a stillbirth, live birth - living or deceased. Including adoptive and Foster parents. Please fill out the TRIS survey  to help update the medical literature and to improve the quality and availability of medical care. Tracking Rare Incidence Syndromes (TRIS)  Click here to add your information

Translation
Search Specific Languages or Countries

 

Design & Hosting lovingly provided by::
Apke Web Services