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Trisomy 13 - Patau Snydrome - Photos, Support and Resources

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In Loving Memory of This Treasured
Trisomy 13 Child

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Luke Samuel Youart

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December 3, 2008 -

  Full Trisomy 13 - Sydney, Australia

Luke's caringbridge page

One of my friends took some beautiful photographs of my Luke
when he was one month old.
We treasure these photos every day. Cherish every moment
 

 
 



Update June29, 2009

Our little Luke was a miracle baby, a cheeky monkey and a real little champ and although his life sounded short at 5.5 months, the impact he has made in our lives will last a lifetime.

Our beautiful boy had Trisomy 13, so we always knew that he wasn't expected to live a long life. We prayed for a simple thing, the chance to meet him alive so we could tell him we loved him. We got this and more! Luke surprised his health professionals and outlived most people's expectations, he always had a surprise up his sleeve. Luke and our God had everything under control. He was born on his terms, lived on his terms and passed away on his terms in the loving arms of his Mummy.

So many prayers were answered in Luke's life, and beyond. At every perceived roadblock there was an answer provided by God and by our tough little Lukey.

Our family made the most of every second with our beautiful boy. We had many fun times and celebrated every crazy little thing and achievement and milestone. He was a miracle baby and, in our eyes at least, was the most beautiful boy ever born.

Of course we miss our gorgeous Luke. It is, however, a great comfort to know he is in heaven where he is having a ball and that we'll get to be with him again one day.

Luke's caringbridge page: http://www.caringbridge.org/visit/lukesamuel/

Alyssa

 

- - -

12-29-08

Brief update
Luke is our little miracle baby!

Throughout our pregnancy we just prayed and prayed that we’d meet our little Luke alive. These prayers, and so many more, have been answered as Luke is now near 4 weeks old.

He is going along nicely but does breathe heavily and hard, most probably due to a significant hole in his heart which is similar to Tetralogy of Fallot.

Despite this, he is a real little champion, a complete joy. He has already taught us, and many others who come into contact with him, so much. We love this little boy with all our heart.

Thanks be to God for his indescribable gift! (2 Cor 9:15)

Alyssa
 lys_rob@westnet.com.au

Alyssa and Robert and big sister Natalie Youart

 

Submitted 12-29-08

 

Have a child living with Trisomy 13?  We would love to add your child to our Album.
Click here to send us their information. (Please note in the subject area if this is a Trisomy 13 photo as I do not open attachments unless I am aware of the sender.)
 
 


 
 

Living with Trisomy 13
Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
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info@LivingWithTrisomy13.org

 

 

All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

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