"Kendall was a true gift from God and I wouldn't trade those
few days for the world."
~ Chandra
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My name is Chandra Johnson chara30@hotmail.com &
jamirsmom04@yahoo.com
My trisomy journey started when I was 18 weeks pregnant with Kendall. My husband
and I went to the doctor for a routine ultrasound to see what the sex
of our child was and the ultrasound tech thought that there was fluid around
our little girls brain.
Our doctor sat us down and told us that she thought
that our child had a disorder called holoprosencephaly. Holoprosencephaly is
a brain disorder where the brain is not formed correctly and usually your
child has a chromosomal disorder.
We were referred to a genetics specialist
who performed my amniocentesis and confirmed that she did have trisomy 13.
We decided that we wanted to continue with the pregnancy even though many
doctors I saw were against us doing so.
Kendall Lynn was born 8lbs 14 oz.
and 20 in. She was born with a cleft lip and palate; a PDA and VSD; two
extra digits on her right foot and left hand, and seizures.
Kendall lived 15
days on and off the ventilator to oxygen a couple of times. She will always
be my special child.
She was a true gift from God and I wouldn't trade those
few days for the world.
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