My name is Chandra Johnson chara30@hotmail.com  & jamirsmom04@yahoo.com

My trisomy journey started when I was 18 weeks pregnant with Kendall. My husband and I went to the doctor for a routine ultrasound to see what the sex of our child was and the ultrasound tech thought that there was fluid around our little girls brain.

Our doctor sat us down and told us that she thought that our child had a disorder called holoprosencephaly. Holoprosencephaly is a brain disorder where the brain is not formed correctly and usually your child has a chromosomal disorder.

We were referred to a genetics specialist who performed my amniocentesis and confirmed that she did have trisomy 13. We decided that we wanted to continue with the pregnancy even though many doctors I saw were against us doing so.

Kendall Lynn was born 8lbs 14 oz. and 20 in. She was born with a cleft lip and palate; a PDA and VSD; two extra digits on her right foot and left hand, and seizures.

Kendall lived 15 days on and off the ventilator to oxygen a couple of times. She will always be my special child.

She was a true gift from God and I wouldn't trade those few days for the world.