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Trisomy 13 - Patau Snydrome - Photos, Support and Resources

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Living with Trisomy 13 - Patau's Syndrome

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Santos Gomez

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Born: March 2, 2007

  St. Paul, Minnesota, (MN) - Full Trisomy 13    
 


My name is Laura Hamilton Gomez, my son Santos has Trisomy 13, and he was born March 2, 2007 at United Hospital in St. Paul, MN.

I can be reached at Laura.M.Gomez@Healthpartners.com

Santos has been beating the odds and his doctors are amazed that he has been able to over come so many hurdles. He unfortunately has had a lot of issues with finding the correct seizure medication and has been hospitalized due to one very scary seizure. He will soon be going in to see his cardiologist to find out if one of the wholes has closed and if not we will be scheduling the surgery to close it.

We have been truly blessed to have as much times as we have had with him, we have been told a lot that he should not have survived birth after all the issues he had at birthday, but he was a fighter and has remained that way.

Santos has a lot of wonderful people who have kept him in their prayers and have been a great support to our family.

 

 

Submitted 2-19-09

 

Have a child living with Trisomy 13?  We would love to add your child to our Album.
Click here to send us their information. (Please note in the subject area if this is a Trisomy 13 photo as I do not open attachments unless I am aware of the sender.)
 
 


 
 

Living with Trisomy 13
Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
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All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

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