Photo Album
Living with Trisomy 13 - Patau's Syndrome

 Rayana Nicole Johns

Born: January , 6, 2006

  Waldorf, Maryland (MD)      
 


Update 5-28-09

Rayana is now 3 1/2 years, she is doing very well. She is using about 10 signs and has a vocabulary of about 45 words.

She is becoming more and more verbal and more social every single day. She is sooo playful and loves to play outside and in the water.

She never stops going!! She still has remained very healthy with ear infections being the only ongoing issue medically that she has had.
Thanks

Shaunna Johns
SNRJOHNS@aol.com

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My name is Shaunna Johns. My daughter's name is Rayana Nicole Johns her date of birth is January , 6, 2006. She was diagnosed with Partial Trisomy 13. We live in Waldorf, Maryland. She was born in Clinton Maryland. 

Overall, Rayana is doing really well. No medical problems or procedures. She is developmentally delayed and is cognitively speaking at about 15 months. She is walking and climbing doing most of what 2 year olds do.

Her biggest struggle is communication. She babbles but no talking. She just learned to sign the word more.

We are so proud of all Rayana has accomplished and would like to give some positive support to other families struggling with these types of challenges.

Shaunna Johns
SNRJOHNS@aol.com



 

 

 

Submitted 12-1-07