Photo Album
Living with Trisomy 13 - Patau's Syndrome

Nathaniel Johnson

 September 10, 2000

Houston, Texas (TX) - mosaic trisomy 13  
 

 

Our son Nathaniel Johnson was born on September 10, 2000 at Winter Park Hospital in Florida.  He has mosaic trisomy 13

We now live in Houston Texas. He has had many health problems since birth including bowel problems, polycystic kidney disease, glaucoma, seizures and respiratory problems.  He has had many surgeries and is tube-fed. 

He does not walk or talk but is very active and loves to play with toys.  He smiles and laughs.  He had a colostomy in January 2006 and almost died.  He has never put on weight well since and is long and thin. 

He recently got sick on February 21 and was hospitalized. 

He is now in a long term care facility for children and we are praying he gets to come back home soon and be with his family. 

We love him and are praying for his full recovery.  He is a special child and has proven, that against all odds, there is always hope for a recovery.  He is a testament of the human spirit and a living testimony of God's grace.     

 Elijah and Susan Johnson (parents)  
Jordana and Samuel Johnson (sister and brother)  
campchicusa@hotmail.com  

 

 

Submitted 3-27-2010