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Living with Trisomy 13 - Patau's Syndrome

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Natalia Ioana Traista

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Born: August 13, 2002

  Mold, North Wales - Partial Trisomy 13    
 

Our names are Adelina, Mihail, Natalia (6 1/2 years old) and Antonia (2 years old) Traista.

Natalia was born on August 13, 2002 in Romania . She was diagnosed with partial trisomy 13 when she was 15 months old. (Originally she was misdiagnosed with trisomy 22 after 6 months we had her retested in Belgium and that diagnosis was partial trisomy 13.) She was born with six fingers on both hands and low muscle tone. Natalia had surgery when she was 7 months olds to remove her extra fingers. She started to walk when she was 3 years old.

Overall Natalia is in good health, however she does have seizures.. She takes Carbamazepine for her seizures. She does have coloboma of the iris in her left eye. Her vocabulary is limited; however she does produce mama tata water egg and babbles in her own language. Natalia’s receptive language is much higher than her expressive language. She use to have difficulties sleeping and takes melatonin to help. She is now sleeping better (with or without the melatonin).

Natalia loves playing with her little sister and she also enjoys swimming, dancing, and music. She is a very friendly little girl, but her favorite thing to do is tease others and then she laughs.

We moved from Romania to Wales , UK when Natalia was 5 years 8 months. This is where she started school and she is very happy. Since the move Natalia has grown and is thriving. Natalia has changed our lives and we love her very much!

Adelina and Mihail Traista
adelina_tr@yahoo.com

 

Submitted 3-21-09

 

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All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
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All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

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