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| "Logan is a
very special little boy, he has changed our lives, we see
life very different now. Logan makes us so proud of all what
he has achieved, he brings so much love into our home."
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Logan is our 1st child. He was 15 days overdue, and was born by
c-section. Logan was 10.7lb. When he was born, we noticed his right
eye wasn’t open, and the midwife took him out the room very quickly,
before I even got to hold him. When I did see Logan his head was
very red and his eyes were all marked. Logan was 4 days old before
we were told he had microphalmia of the right eye. As time went by
we realized Logan wasn’t developing as he should, he feed well and
put weight on, but he couldn’t sit up, or crawl. Logan was referred
to a development centre and was diagnosed at 11 months that he had
partial trisomy 13. Logan then had a lot of tests, he has 2 holes in
his heart, 2 arachnoid cysts, an under development on the left part
of his brain, he had no matter on his brain. Logan’s hypothalamus
isn’t developed properly so Logan has growth hormone injections
daily and regular checks on other hormone levels. Logan has never
been a good sleeper, and is on phenegran to help him sleep. Logan
has iron daily and wears a prosthetic lens.
Logan is a happy little boy, and is sociable, he is very active and
never stops!!! Logan has been learning makaton since before he was
2, the Genetic Dr. told us it would be unlikely he would be able 2
talk like us, he may have a few words and sign or rely on sign.
Logan is 4 years old now and he does have a few words and signs.
Logan has behavioral issues and are being looked at over the next
few months. Logan also is having tests due to having so many soiled
nappies daily. Logan is developing nicely at his own pace. I have
always done as many groups with Logan as suggested by all the
professionals. Logan starts school in September 2009 with full time
support. Logan started walking at 19 months, 5 days at 2 in the
afternoon.
 Logan is a very special little boy, he has changed our lives, we see
life very different now. Logan makes us so proud of all what he has
achieved, he brings so much love in 2 our home. It hasn’t been like
we imagined having a child, but it has been a very special journey
and it has brought us all closer together Logan is a very cheeky
character.
Joanne and Glen Lawler
joannelawler@btinternet.com
  
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