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Living with Trisomy 13 - Patau's Syndrome

Emma Jamilyah

 January 5, 2010

Raleigh, NC -  Trisomy 13 translocation  
 
Update: 7-2-10

Emma was seen by a pediatric opthalmologist on 5/19.  She was diagnosed with large iris colobomas which probably means that she has little to no vision.  At least that's what the doctor said, but I know a man that can heal the blind... :-)   I have published a few journals detailing my feelings and experiences as a trisomy mommy. 

 http://www.associatedcontent.com/user/803976/bettina_roberts_flood.html  

Bettina

5-20-2010

Hi all. I am Emma Jamilyah Flood. I was born January 5, 2010 (on my parents' anniversary!) and I have trisomy 13 translocation. My parents had no clue what that was, or that I had it until 5 days after I was born. I was born with a sacrococcygeal teratoma, and it caused me lots of pain. But the doctors said there was no reason ...to remove it because I wasn't going to live long anyway. But God knew better. He placed so many angels and prayers around me.

After two months of being home with my parents, they decided to pursue the surgery, and on March 12, 2010, I went through 9 and a half hours of surgery to remove the teratoma, along with a few other minor issues. Through the grace of God, I am ALIVE and WELL! No more pain! I am more than likely blind, and of course, there are some developmental delays, but aside from my occasional apnea, the doctors say I am really healthy! TO GOD BE THE GLORY! I love my mommy and daddy, and my big brother Jody.

I am so glad that God has allowed me to spend this time with my family. No matter how long I am here, I will continue to let God use me to bless others through my testimony.

Bettina Flood
bjroberts417@yahoo.com
 

Submitted  5-20-2010