Photo Album
Living with Trisomy 13 - Patau's Syndrome

Baylie Newcomb

 

  Emporia, Kansas (KS) - Partial Trisomy 4P/Partial Trisomy 13Q
 

www.caringbridge.org/visit/baylie

 
 

"Baylie is definitely a miracle of God!"



Currently, Baylie is on a trach and ventilator, is fed via g-tube, and is almost 2 1/2 years old. She continues to make improvements, and has had about 3 surgeries to this date.

She has extra digits on both hands & feet (which are hopefully to be removed soon). We are also currently being able to take her off of the vent for trial periods, for up to six hours a day (broken up into 3 times of 1-2 hours each).

She is definitely a miracle of God!

This picture is approximately 3 months old...I can't find a birth photo on this computer.

The current photo was from about 2 months ago; I know I have more recent ones, but can't seem to find them!



Julie & Don Newcomb III
ncombfam@sbcglobal.net

 

 

Submitted 9-15-08