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Text and graphics ©
LivingWithTrisomy13.org 2005-2007
All information found on this site was submitted to
us directly by the families and used on this site with their permission. |
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Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela
Sullivan 2004, used with permission. |
If We Hold On Together Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.
Used with permission.
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*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy
13 child. It is not meant to replace any medical advise of a professional
familiar with your specific condition. The personal journeys of any parents on
this site are only their opinions and their own journey with having a Trisomy 13
child. You should consult with your own physician or other medical professional
regarding the opinions or recommendations expressed within these pages as to
your own child's symptoms and medical condition. |
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Looking for ALL families who’ve had a trisomy child of any number.
Whether you terminated, miscarriage, had a stillbirth, live birth -
living or deceased. Including adoptive and Foster parents. Please fill
out the
TRIS survey
to help update the medical literature and to improve the quality and
availability of medical care. Tracking Rare
Incidence Syndromes (TRIS)
Click here to add your information |
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Alexis
is an amazing little baby with full trisomy 13. When she was first born we
were surprised to learn of her diagnosis and we were told that we probably
would not have much time with her. She has truly beat all odds and become an
inspiration for us. Alexis is a happy and smart little girl who is full of
smiles and loves kisses. She loves to play with her toys and everything goes
into her mouth. Truly we are blessed to have such an amazing little girl.
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