Photo Album
Living with Trisomy 13 - Patau's Syndrome

Alexis Okoroh

Born: January 2008

  Illinois - Full Trisomy 13
 
   
 


Alexis is an amazing little baby with full trisomy 13. When she was first born we were surprised to learn of her diagnosis and we were told that we probably would not have much time with her. She has truly beat all odds and become an inspiration for us. Alexis is a happy and smart little girl who is full of smiles and loves kisses. She loves to play with her toys and everything goes into her mouth. Truly we are blessed to have such an amazing little girl.

Alexis spent her first few weeks in the neonatal intensive care unit. She was discharged on oxygen and ng/tube feeds. Our time at home has had its ups and downs, but Alexis now eats by mouth without the need for ng supplementation and we are working to get her off of her oxygen (for the second time).

We are so fortunate that friends and family came to visit and support us when we first brought our little angel home. Everyone at Melanie's job and all of Alexis' caregivers have been so supportive as well. We are truly blessed.

Alexis is now 7 months old and thriving.
Melanie melanie@citychicboutique.com

 


 

 

Submitted 8-18-08